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Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see? (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)
For those of you who follow my blog, or who have even read a little bit of my blog, you’ve probably figured out that I’m not your typical open and shut case. Actually, there is nothing “typical” or “textbook” about me or any of my healthcare concerns. While I am seen at a teaching hospital, I am very used to seeing multiple care providers at each appointment, generally beginning with a medical student, a rotating resident, sometimes a fellow, and then, finally, my attending doctor. Fortunately, I’m at a point in my “medical history” where all of my physicians have been hand picked by my primary care doctor or other members of my team, specifically for the expertise that they have in abnormal cases like my own. I give my team a whole lot of credit. Actually, to put it in non-technical terms, my team is pretty freaking amazing! They give me the time, attention, and dedication to listen to my concerns, see the issues that may, and usually do not fit inside the neat little box (but when does diabetes ever play nice, and fit inside of the stereotypical box?!?), and work to appeal insurance rules that say that because I’m not a textbook “type 1 diabetic” I’m not eligible to remain on my current therapy of an insulin pump.
I’m lucky, because my team of CDEs live with type 1 diabetes themselves, and know what living with the ups and downs of diabetes is like. They know that sometimes, no matter what we do and no matter how hard we try, BG numbers are going to be wonky, and it will have nothing to do with what I did to manage my diabetes, or more, what I didn’t do. I consider myself to have the dream team when it comes to endocrinology providers, because when I ask about pump questions, chances are, my CDE will pull out her pump or CGM and show me how she’s doing things right now, not look down at me like I should have been able to do better. There is no judgement, and I feel so comfortable discussing what is and what is not working with my team. This hasn’t always been the case, but I feel so incredibly fortunate to have the team that I have now. They are truly amazing, and it makes living with a condition that must constantly be managed just a little bit easier.
~ Aliza Chanatest Filed under dblog week | Comment (1)